Long-Term Conditions & Dementia Services

 

1. Care for those with Long-Term Conditions

Often, people with long-term conditions (LTC) may need someone with them 24 hours a day in case an intervention, for medical or for safety reasons, is required. We recognise that LTC's affect people differently, so it is important that care is adapted to suit the needs of the individual. Below of some examples of LTC's that we support:-

  • Dementia; advanced Alzheimer's,  Frontotemporal Dementia (FTD) and Lewy Body dementia (LBD or DLB)
  • Neuromuscular conditionsParkinson’s, Muscular Dystrophy, Huntington’s Disease, Dystonia
  • Auto-immune conditions; Multiple Sclerosis, Rheumatoid Arthritis, Lupus
  • Brain Injury; Stroke, Locked-In Syndrome, brain tumour, encephalitis, aneurysm, epilepsy
  • Chronic Regional Pain Syndrome
  • Mental health conditions, including Somatoform, anxiety, depression
  • Palliative/end of life Care
  • Learning Disabilities, Autism, Asperger’s
  • Spinal injuries

 

Our upskilled staff can undertake the following delegated clinical tasks in addition to personal care: -

  • Tracheostomy care including non-invasive ventilation (CPAP & BiPAP)
  • Cough Assist, nebulisers, oxygen and suction machines
  • Care of PEG/JPEG site, PEG feeding, administration of medicines via a PEG
  • Complex medication regime
  • Catheter care, including supra-pubic catheters and Conveens & stoma care
  • Passive exercises
  • Vagal Nerve Stimulation (VNS) for epilepsy
  • Intermittent-catheter care. 

2. Our Dementia Care Service

Some people can live well at home with dementia for many years. However, others may experience a complete loss of safety awareness both indoors and outdoors, putting themselves at risk of harm when crossing roads or using kitchen appliances, for example. This can be distressing to both the service user and their loved ones.

When symptoms such as these are present, the person may need 24-hour care to ensure they are safe at all times. In some cases, they may be protected by a Deprivation of Liberty Order (DoLS), agreed by the Court of Protection, which will prescribe legal measures to ensure their safety but not deprive them of their liberty.

Aster Care is experienced in supporting people with a community DoLS order, ensuring this is used appropriately and will not be to the person's detriment. 

 

2a Our Model of Dementia Care

Aster Care uses a range of resources to effectively deliver care: -

1) 'Dementia - A Practical Guide for Staff booklet was produced by our Operations Director who aimed to, a) give simple explanations of the main types of dementia and, b) to guide staff how to respond sensitively to behaviour manifestations.

2) Partnership Working with our community mental health professionals both prior to, and after hospital discharge, to assist adults with complex dementia to return home - and stay there for as long as possible.  

3) We use and distribute information from the Alzheimer's Society to support staff and families with key lifestyle skills, i.e., advice on how to manage your money, keeping safe at home, how to eat well, etc. 

4) Our Dementia Care policy is based on the principles of Professor Thomas Kitwood and his research into dementia, and the guidelines as set by the National Institute for Clinical Excellence (NICE), taking into account: -

  • The individuality of the person including their needs and preferences, paying due regard to their mental capacity.
  • The need to embrace person-centred care and personhood.
  • The need to involve the family members or key people in the cared-for person’s life, with permission, to listen to and include their views.
  • The importance of allocating a key worker and undertaking frequent reviews that inform the care plan. 
  • The need to support informal carers, signposting them to respite services as required.
  • Integrated working with other health care professionals to deliver the best care possible to the individual.

5) We are members of the NHS National Institue for Health Research to help beat dementia.

6) Making Local Connections: We work with local shops, cafes and museums to alert them to our service users' needs.

7) Working with Community Police: We alert the local police with photos and basic information regarding our vulnerable adults who may be at risk if they abscond.